It is both scary and sad.
There are many doctors who have no clue what the full form of MG is or what Myasthenia Gravis is.
We as patients have to many a times explain to them the gravity of the situation and the disease. It is that rare an autoimmune disease.
MG is rare and only affects 14 to 20 people out of every 100,000-in the US.
I realize it is equally important to create awareness about MG as is for scientists and doctors to continue looking for a permanent cure for it.
I wonder why finding a cure is so difficult?
I meanwhile muster up my courage to write my MG story in the days to come.
- How it came from nowhere
- How it hit
- How it changed my life
- How it left me feeble and weak
- How it made me strong and stubborn
- How it made me dwell into things unknown and mysterious
- How it made me spiritually go two notches up
- How it made me discover my strengths
- How it made me cry into my bed
Watch out for this space.
Meanwhile like each day…I pray…I pray that the doctors, scientists and researchers are one more step closer to finding a permanent solution to MG.
There are thousands across the globe waiting with a lot of hope.
If you want to share your story please feel free to write in the comment below 🙂